H. RES. 209 expresses support for designating April 5, 2025, as Barth Syndrome Awareness Day. The resolution highlights the serious nature of Barth syndrome, a rare genetic disorder affecting mostly males, and the importance of increasing awareness, promoting early diagnosis,...
Simple Explanation
Imagine there's a special day called Barth Syndrome Awareness Day on April 5, 2025, where people learn about a rare illness mostly affecting boys, in hopes of finding ways to help them feel better and live healthier lives. This means talking about it more so doctors and scientists can help those with the illness.