Search Results: keywords:"early diagnosis"

  • H. RES. 253 — Expressing support for the designation of May 15, 2025, as Prader-Willi Syndrome Awareness Day to raise awareness of and promote research on the disorder.
    Status:Introduced in House
    Words:291

    H. RES. 253 expresses support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to raise awareness about this rare genetic disorder. The resolution highlights the challenges and symptoms faced by individuals with Prader-Willi Syndrome (PWS), such...

    Simple Explanation

    In 2025, people want to call May 15th "Prader-Willi Syndrome Awareness Day" to help everyone learn more about this special condition. They hope this will encourage more research and better help for those who have it.

  • H. RES. 1521 — Expressing support for the designation of September 30, 2024, as Rare Cancer Day to highlight the challenges patients with rare cancers face and to raise awareness and support efforts to improve early diagnosis and treatment.
    Status:Introduced in House
    Words:301

    H. RES. 1521 supports the creation of "Rare Cancer Day" on September 30, 2024, to raise awareness about the difficulties faced by patients with rare types of cancer. The resolution highlights that rare cancers are responsible for a significant number of cancer deaths and...

    Simple Explanation

    This bill helps to show support for having a special day called "Rare Cancer Day" on September 30, 2024, to help people learn about rare cancers, which are hard to find and treat. It wants to help doctors and scientists work together to find ways to spot these rare cancers early and create better medicines to help people get better.

  • H. RES. 172 — Raising awareness for the sarcoma cancer chordoma.
    Status:Introduced in House
    Words:164

    H. RES. 172 is a resolution aimed at raising awareness for chordoma, a rare and aggressive bone cancer that affects the skull and spine. The resolution highlights the difficulties in treating this cancer due to its location near critical body structures, and notes the current...

    Simple Explanation

    H. RES. 172 is a plan to help people learn about a rare kind of cancer called chordoma, which is hard to treat because it grows in tough places like the skull and spine. The goal is to get more money to find better ways to detect it early and create new medicines to help people feel better.

  • H. RES. 1514 — Recognizing that cancer patients have the right to receive care that ensures effective prevention, early diagnosis, improved outcomes, optimal patient rehabilitation, and affordable health care.
    Status:Introduced in House
    Words:304

    H. RES. 1514 recognizes the rights of cancer patients to receive care that promotes prevention, early diagnosis, and improved outcomes, while being affordable and ensuring effective rehabilitation. It emphasizes the importance of access to cutting-edge treatments, clinical...

    Simple Explanation

    H. RES. 1514 says that people with cancer should get really good care that helps them get better faster, doesn’t cost too much, and makes sure everyone, no matter who they are, gets the same chance to feel healthy again.

  • H. RES. 209 — Expressing support for the designation of April 5, 2025, as Barth Syndrome Awareness Day.
    Status:Introduced in House
    Words:212

    H. RES. 209 expresses support for designating April 5, 2025, as Barth Syndrome Awareness Day. The resolution highlights the serious nature of Barth syndrome, a rare genetic disorder affecting mostly males, and the importance of increasing awareness, promoting early diagnosis,...

    Simple Explanation

    Imagine there's a special day called Barth Syndrome Awareness Day on April 5, 2025, where people learn about a rare illness mostly affecting boys, in hopes of finding ways to help them feel better and live healthier lives. This means talking about it more so doctors and scientists can help those with the illness.

  • H. RES. 1025 — Expressing support for the designation of April 5, 2024, as Barth Syndrome Awareness Day.
    Status:Introduced in House
    Words:193

    H. RES. 1025 is a resolution that supports designating April 5, 2024, as "Barth Syndrome Awareness Day." It aims to raise awareness about Barth syndrome, a rare genetic disorder that primarily affects males and can be life-threatening due to heart failure or infections. The resolution...

    Simple Explanation

    H. RES. 1025 is a suggestion to make April 5, 2024, "Barth Syndrome Awareness Day" to help people learn about a rare illness that mostly affects boys and can make them very sick. This day is meant to encourage finding better ways to identify and treat the disease and to say thank you to groups that support these efforts.

  • S. RES. 636 — Designating February 29, 2024, as Rare Disease Day.
    Status:Agreed to Senate
    Words:205

    S. RES. 636 is a resolution passed by the U.S. Senate designating February 29, 2024, as "Rare Disease Day." This day recognizes the impact of rare diseases, which affect less than 200,000 people each in the United States, acknowledging the challenges faced by individuals with...

    Simple Explanation

    The U.S. Senate decided to make February 29, 2024, a special day called "Rare Disease Day" to help everyone remember and support people who have rare diseases, which are health problems that not many people have. This day is important for helping doctors figure out these diseases sooner and to encourage finding new ways to help people who have them feel better.

  • H. RES. 1307 — Expressing support for the designation of June 20, 2024, as World FSHD Day.
    Status:Introduced in House
    Words:226

    H. RES. 1307 proposes to support the recognition of June 20, 2024, as "World FSHD Day." This resolution aims to raise awareness and improve education regarding facioscapulohumeral muscular dystrophy (FSHD), a genetic disease that weakens muscles. It emphasizes the importance...

    Simple Explanation

    H. RES. 1307 wants to make June 20, 2024, a special day to think about and learn more about a muscle disease called FSHD, where muscles get weak, so people can get help and scientists can find better ways to treat it.