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Search Results: keywords:"barth syndrome awareness day"

  • H. RES. 1025 is a resolution that supports designating April 5, 2024, as "Barth Syndrome Awareness Day." It aims to raise awareness about Barth syndrome, a rare genetic disorder that primarily affects males and can be life-threatening due to heart failure or infections. The resolution...

    Simple Explanation

    H. RES. 1025 is a suggestion to make April 5, 2024, "Barth Syndrome Awareness Day" to help people learn about a rare illness that mostly affects boys and can make them very sick. This day is meant to encourage finding better ways to identify and treat the disease and to say thank you to groups that support these efforts.