Overview
Title
An Act To amend the Public Health Service Act to enhance and reauthorize activities and programs relating to autism spectrum disorder, and for other purposes.
ELI5 AI
The "Autism CARES Act of 2024" is a plan to help people with autism by making sure there is more money to study and support them, but some people think it could be clearer about how the money will be spent.
Summary AI
H.R. 7213, also known as the "Autism CARES Act of 2024," seeks to enhance and reauthorize various activities and programs related to autism spectrum disorder. The bill proposes amendments to the Public Health Service Act to expand research and services, ensure public input, update strategic plans, and improve coordination among federal departments. It includes provisions for increased funding from 2025 to 2029, promotes evidence-based practices for intervention, and aims to improve mental health support and transition services for individuals with autism. Additionally, the bill authorizes technical assistance to enhance access to communication tools for people with developmental disabilities.
Published
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Bill Statistics
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Language
Complexity
AnalysisAI
Overview of the Bill
The proposed legislation, identified as H.R. 7213 or the "Autism CARES Act of 2024," seeks to amend the Public Health Service Act to enhance and reauthorize activities and programs related to autism spectrum disorder (ASD). The bill focuses on expanding research, improving services, and increasing funding for programs that support individuals with autism and their families. Essential components of the bill include expanding research to cover more disciplines, ensuring public input for autism-related programs, and increasing funding for these initiatives through 2029.
Significant Issues
Several issues have been identified within the bill that may affect its implementation and effectiveness. One primary concern is the significant increase in authorized funding amounts without a detailed justification for these increases. This raises potential concerns about inefficient resource allocation or wasteful spending.
Another issue arises from the expanded activities at the National Institutes of Health (NIH), which, while aiming for comprehensiveness, involve complex language that might lead to confusion and affect clarity for policymakers and the public. The frequent changes to terminology, such as "tribe" to "Tribe" and "culturally competent" to "culturally and linguistically appropriate," add complexity without clear evidence of improving legislative effectiveness.
Section 4 inadequately specifies criteria for prioritizing technical assistance requests, which could lead to delays or perceived favoritism. The language defining "evidence-based services" and "advancements" is vague and might lead to varying interpretations.
Finally, there are concerns about the necessity and impact of reporting requirements. The bill mandates multiple reports to Congress, which add additional workload and might result in redundant paperwork without contributing significantly to improved autism services.
Public Impact
Broadly, the Autism CARES Act of 2024 aims to enhance support for individuals with autism and their families, potentially improving outcomes through increased funding and expanded research. By involving more areas of study, the research could lead to more holistic understanding and better treatments for people with autism spectrum disorder.
However, the bill’s unclear aspects might hinder its effectiveness. For example, increased funding without clear justification could lead to inefficient use of resources, potentially diverting money from more impactful initiatives. Additionally, vagueness in implementation details might cause inconsistencies in service provision across different regions.
Impact on Specific Stakeholders
For individuals with autism and their families, the bill could lead to better support services, more comprehensive care options, and improved interventions. However, they may face inconsistencies in service quality if implementation guidelines are not effectively specified.
Educational and healthcare professionals could benefit from increased funding and enhanced training programs, which might help them provide better diagnostic and treatment services. Yet, they might struggle with implementation without clear guidelines on prioritizing interventions.
Governmental agencies and organizations focused on autism might find new avenues for collaboration but also encounter challenges in managing additional reporting requirements, which may stretch existing resources.
In conclusion, while the Autism CARES Act of 2024 has the potential to significantly enhance support for autism spectrum disorder, careful attention to the bill's implementation details and clear justification for increased funding will be crucial in ensuring it achieves its intended benefits without unintended negative consequences.
Financial Assessment
The bill known as the "Autism CARES Act of 2024" proposes several financial allocations and adjustments designed to support expanded activities and services related to autism spectrum disorder. This commentary focuses on how these financial references are structured within the bill and how they relate to the identified issues.
Summary of Financial Allocations
The bill authorizes increases in funding for various programs associated with autism, particularly noted in Section 3(e). Here, the authorized amounts are significantly increased from previous years. Specifically, the bill proposes:
- $28,100,000 for each fiscal year from 2025 through 2029 for a program previously authorized at $23,100,000 annually from 2020 through 2024.
- $56,344,000 for each fiscal year from 2025 through 2029, up from $50,599,000 authorized annually from 2020 through 2024.
- $306,000,000 authorized for each fiscal year from 2025 through 2029 in another section, an increase from $296,000,000 authorized annually between 2020 and 2024.
Issues Related to Financial Allocations
Lack of Justification for Budget Increases:
- While the bill clearly specifies increased funding allocations, it lacks a detailed justification for these changes, leading to concerns about potential inefficiencies. Without explicit explanations or plans showing how the increased funds will address unmet needs or improve services, there might be perceptions of wasteful expenditure. This aligns with the issue of significant budgetary increases mentioned in the issues list.
Complexity and Clarity:
- The bill's language, especially in financial contexts, can be complex. For instance, complex and detailed financial provisions in Section 3 could lead to misunderstanding among the public or policymakers not intimately involved with financial legislation. Simplifying the language could mitigate these issues.
Implementation and Accountability:
- The potential for vague descriptions of how funds will be utilized relates to concerns about the accountability and effectiveness of funded activities. The bill specifies increased allocations but does not equally elaborate on the criteria or oversight mechanisms to ensure these funds are used effectively, which could improve accountability and trust in the process.
Conclusion
The "Autism CARES Act of 2024" contains various financial allocations intended to support expanded research, intervention, and services for individuals with autism spectrum disorder. However, the lack of detailed rationale for increased budgets and the complexity of the language present potential challenges in understanding and effectively utilizing these appropriations. Clearer justifications and streamlined language would be beneficial in addressing concerns about financial efficiency and accountability.
Issues
The budgetary increases in Section 3(e) related to appropriations significantly raise the authorized amounts without detailed justification for the increased amounts, which might lead to concerns about potential wasteful spending or inefficient resource allocation.
Section 2 details the expansion of National Institutes of Health activities, which, while comprehensive, could lead to confusion due to the extensive use of complex language. This complexity might affect clarity and understanding for both policymakers and the public.
The amendments in Section 3 concerning the frequent changes to terminology (e.g., 'tribe' to 'Tribe', 'culturally competent' to 'culturally and linguistically appropriate') may add unnecessary complexity without clear evidence of improving the legislation's effectiveness.
Section 4 lacks specific criteria or guidelines on how the Secretary should prioritize technical assistance requests, potentially leading to implementation delays or perceived favoritism, which could be problematic from a fairness and efficiency perspective.
The language in Section 4 describing 'evidence-based services' and 'advancements' is somewhat vague, which may lead to ambiguity and varying interpretations that could impact the effective implementation of these services.
The requirement in Section 3(d) for multiple reports and updates, such as the biennial update to Congress on the strategic plan, adds additional workload. The necessity and impact of these reports are not clearly justified, which might lead to redundant reporting if not carefully managed.
Section 2's requirement for public input methods lacks specificity on the processes for collecting and incorporating feedback, which could lead to unimplemented or ineffective feedback systems, raising concerns about the effectiveness of public engagement efforts.
Section 3 includes amendments that promote research through grants or contracts but lacks specificity on vetting these projects for effectiveness, leading to concerns about accountability and the responsible allocation of funding.
Sections
Sections are presented as they are annotated in the original legislative text. Any missing headers, numbers, or non-consecutive order is due to the original text.
1. Short title Read Opens in new tab
Summary AI
The Autism CARES Act of 2024 is the official short title of this legislative act.
2. National Institutes of Health activities Read Opens in new tab
Summary AI
The amendments to Section 409C of the Public Health Service Act aim to expand the research focus areas to include more disciplines like psychiatry, psychology, and audiology for a comprehensive study on autism, ensure public input on autism programs at the National Institutes of Health, increase the number of centers of excellence, and require an annual budget estimate for autism initiatives from fiscal years 2026 to 2029.
3. Programs relating to autism Read Opens in new tab
Summary AI
The text outlines updates to various sections of the Public Health Service Act related to autism programs. It includes amendments to terminology, enhancements in autism education, early detection, and intervention efforts, updates to interagency coordination and reporting, and increases in funding authorizations through 2029.
Money References
- Such report shall include activities and research related to the entire population of individuals with autism spectrum disorder, including those individuals with co-occurring conditions and the full range of needs for supports and services, including such supports and services to ensure the safety, and promote the well-being, of such individuals.”; (3) in subsection (b)— (A) in the heading of subsection (b), by striking “Health and Well-Being” and inserting “Mental Health Needs”; (B) in paragraph (1), by striking “health and well-being” and inserting “mental health needs”; and (C) by amending paragraph (2) to read as follows: “(2) CONTENTS.—The report submitted under paragraph (1) shall contain— “(A) an overview of policies and programs relevant to the mental health of individuals with autism spectrum disorder across their lifespan, including an identification of existing Federal laws, regulations, policies, research, and programs; and “(B) recommendations to improve mental health outcomes and address related disparities in mental health care for individuals with autism spectrum disorder, including prevention, care coordination, and community-based services.”; (4) by adding at the end the following: “(c) Update on young adults and youth transitioning to adulthood.—Not later than 2 years after the date of enactment of the Autism CARES Act of 2024, the Secretary, in coordination with other relevant Federal departments and agencies, as appropriate, shall prepare and submit to the Committee on Energy and Commerce of the House of Representatives and the Committee on Health, Education, Labor, and Pensions of the Senate an update to the report required pursuant to subsection (b) of this section, as added by section 6 of the Autism Cares Act of 2014 (Public Law 113–157), and in effect before the date of enactment of the Autism CARES Act of 2019 (Public Law 116–60), concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood.”. (e) Authorization of appropriations.—Section 399EE of the Public Health Service Act (42 U.S.C. 280i–4) is amended— (1) in subsection (a), by striking “$23,100,000 for each of fiscal years 2020 through 2024” and inserting “$28,100,000 for each of fiscal years 2025 through 2029”; (2) in subsection (b), by striking “$50,599,000 for each of fiscal years 2020 through 2024” and inserting “$56,344,000 for each of fiscal years 2025 through 2029”; and (3) in subsection (c), by striking “there are authorized to be appropriated $296,000,000 for each of fiscal years 2020 through 2024” and inserting “there is authorized to be appropriated $306,000,000 for each of fiscal years 2025 through 2029”. ---
4. Technical assistance to improve access to communication tools Read Opens in new tab
Summary AI
The Secretary of Health and Human Services can help states, tribes, and other regions by providing training and advice on using federal funds to offer communication tools and services for people with autism or developmental disabilities. Each year, the Secretary must report to Congress on the assistance given and any progress in creating or assessing these tools.